Devyn has what’s called lissencephaly, meaning she was born with a smooth brain. She suffers from lots of seizures and is at about a 9 month to 1-yr-old level but she is really 12 years old. She does do way more than doctors ever thought she would and has learned to communicate in her own way. We are very blessed to have her! She is a sweet girl who is always in a good mood! Dev is very intrigued with what’s going on while she is on the bike. She is wheelchair bound and walks with a lot of assistance so she is still trying to figure out how her legs are going around on the bike. She is one determined little girl so we are hoping we will be able to get her to pedal on her own as the pedals go around so easily, but it will take some time. We believe the foot straps will help us with this because she does get the concept of lifting her legs to walk.
Reagan is super sweet and smiley (when she’s feeling well) and everyone LOVES her! She enjoys swinging, swimming, and being outside! She definitely seems to like riding the new bike and it’s so much easier to use than her previous AMBUCS one! (The rear steering is great)!! Thank you so much for your help in getting it! Now we’re looking into a Chill-Out Chair!
Freedom Concepts is grateful for the support of non-profit funders, all across North America, who help to get bikes to children who need them. From time to time though, we come across a true grassroots effort that is as inspiring as it is generous. This is a wonderful story that illustrates how one group of colleagues, all on their own, came together to change the world for one little boy and his dad!
Testimonial from Funder:
A few months prior to getting into contact with you, Clayton had sent an email to our department requesting us to vote for Hunter on a website to “Win” a Freedom Concepts Bike. I believe it was based on total votes received by a certain timeline. Of course Hunter did not win which created the instant response by my fellow colleagues, “He’s getting a bike”. I can’t say enough about the hearts of the people I work with. It is without a doubt the most positive aspect of my position. The group is a strong collection of mostly Nurse Anesthetist (CRNA)s, Anesthesiologists, and supportive staff. We quickly organized to collect money and ensured that Clayton remained unaware of our intentions. Everyone did a great job of keeping the secret, and communicating through email void of his reception was a beneficial tool to use. We were able to keep communications of monies raised, monies still needed, and correspondence with your office. The interesting thing was, we initially thought the bike cost in the ball park of $2,000.00. As I contacted you and realized the cost was larger, I informed my department of the extra challenge. The response was immediate, “Let’s do another round of collection”. People just kept giving as we set our goal to the amount of $4,000.00. It is no surprise to me of the generosity of the people I work with. It was something everyone felt joy in doing.
As for the “why” of Clayton. The truth is, very few of us have ever met Hunter. Spending so much time at work in such a unique institution (Level 1 Trauma and Transplant Center), the opportunities for interacting with your colleague’s family is very limited. That being said, your colleagues themselves are treated as your second family, and we have always kept that part of our culture here. Clayton has the highest adoration and respect of many in our department. He brings to his patients a true sense of selflessness and empathy. He is a Father of a special needs child, and expresses joy, love, and respect for his Son Hunter.
We know it must not be easy. We as Parents understand the challenges of everyday life in Parenting on the most basic level. To see Clayton walk strong as a Man in Faith, and Fatherhood is a true blessing of inspiration to us all. He deserved our respect and the response to filling the need of something so basic for his Son was testimony to him.
As for the “why” of Hunter. Purely simple, a boy needs a bike. Every person remembers their childhood bike. The freedom, adventure, and joy of feeling alive follows the pursuit of something within us. It is a desire innate to all persons, and Hunter is a boy who deserves that experience.
I wanted to thank you for the support and role you played in our mission. It has brought a lot of people together for something wonderful. It has also brought to our attention, the “need’ and “expense” of certain equipments regarding special needs. Although many of the equipments are taken for granted when one sees for example, a wheelchair, Scooter, bike, etc, many do not appreciate the significant cost this creates for a Family. It was a blessing to be a part of supporting this effort, and your office has our utmost respect and thanks.
Testimonial from Father:
Hunter has been on his bike every day I’ve had it As you know, hunter doesn’t talk. When I take him outside, he goes straight to the garage door and waits for me to open it so I can get it out for him. He truly does enjoy his bike and if it wasn’t for the bikes you make, Hunter may not have gotten to experience that joy.
We have been looking for a long time for a comfortable chair for our son. We could never find anything deep enough for him to sit in without him slipping out. The Chill-Out Chair was recommended by one of his new therapists and we love it! Itâ€™s the first chair that we have found that supports him properly and allows him to sit up and join in with family activities. We also love the fact that it is offered with wheels so that we can push the chair around the house instead of having to pick him up and move him. We would definitely recommend this chair for other special needs families!
-Christina, Caleb’s mother
We just got the bike an hour ago and Andy already tried it. He LOVED it!! We actually have a small incline on the street so he was able to do it himself. It was the most amazing moment when he looked over and realized he was the one biking. He was so happy!! We canâ€™t thank you enough!!
You have made such a huge difference in his life. We are just so grateful to you and to the foundation* for this amazing gift.
So I have attached a couple of pictures. I think you will be able to see just how happy he is on the bike. .
Thank you so much!!
*The Ethan Henry Lecours Foundation generously funded Andy’s adaptive tricycle.
Great news!! Beau has his bike, and he loves it!
I want you guys to know that he was really discouraged for several weeks (4 weeks, actually) after his surgery in August and he lost so much strength in his core and his legs, that he could barely stand even with assistance. He was falling forward and his legs were collapsing every time he tried to stand or walk. He didn’t want to play or even move around our house. He just wanted to lay on the couch or in his bed and when encouraged to get up and play he told us he “can’t” constantly.
As soon as we received the trike from Freedom Concepts (literally, the delivery truck was still in our driveway when we got Beau up on the bike!) Beau started trying to pedal. He rode several times a day for several days. Within two days Beau took his first independent steps! His physical therapists and I whole-heartily believe that the exercise he receives from riding have made walking possible. We can’t thank you all enough for providing Beau with hope, independence and happiness- all achieved while riding his new bike!
“Thank you” just isn’t enough!
Please enjoy the pictures and videos I’ve attached
Our daughter Vivienne received her adaptive bike last Thursday evening. On the weekend we were able to try it out for the first time and she LOVED it! I am attaching a picture with a big smile on her face enjoying her new gained mobility.
Please also check out a video of her: http://vivienneannika.blogspot.com/
Her laughter and fun are a testimony for your commitment in helping children. Being able to operate a bike by herself, made not only my heart jump, but more importantly Vivienne’s heart jumped “a million” (That’s how Vivienne would say it.)
Thank you for not hesitating a heartbeat in reaching out to our wonderful daughter Vivienne and our family!
God bless you,
Helena (Vivienne’s mother)
Dear Freedom Concepts,
My entire family would like to thank you soooo much for producing such a wonderful bike for our son. Having his own bike to ride has brought such joy to our son. Bryan now can go out for a bike ride with his little sisters and his best friend(his service dog Tyak). Bryan no longer needs to sit in his wheelchair and watch his sisters and the other kids in the neighborhood ride their bikes. He now has his own! We no longer need to hear Bryan ask us why he doesn’t have a bike. Thanks to Freedom Concepts,Bryan now can go out for a ride like all the other kids.
After spending last summer living in the hospital and not being to be home and go out to play, this has made our little boy so happy. Not only has this made Bryan so happy, but all his doctors are very excited. This is a great way for him to get exercise and also help strengthen his legs which for a child who has cerebral palsy is a very difficult task.
We can go on and on about how wonderful having this new Freedon Concepts bike in our son’s life has positively impacted our family, but we just wanted to reach out and say thank you for helping make so many kids and adults so happy!
Marissa & Tony Rebimbas
and Bryan & Tyak
and his sisters Coryn & Madison too!!!!!!
Dear Freedom Concepts,
Josh was born at 25 weeks gestation.Â Due to his premature birth he suffered a Grade 4 IVH which led to Hydrocephalus and required placement of an IVP shunt when he was 3 months old.Â He’s endured multiple shunt revisions.Â To date Josh has developed seizure disorder and has global developmental delays.Â He is ambulatory but nonverbal.Â Josh also has a twin brother who has no delays.
When Josh was introduced to the Freedom Concepts trike at physical therapy, it was evident that he loved it.Â We began applying for insurance coverage immediately.Â The process required effort on our part but we followed the directions recommended by Freedom Concepts.Â After pursuing coverage following a denial and an appeal we finally received approval!Â The wait was well worth it and Josh LOVES his new trike!!
Now Josh can ride his trike while his brother rides his bike.Â It’s great to see them both enjoying the freedom and outdoors together.
Dear Freedom Concepts,
Thank you so much for your incredible kindness to Angelo and his family. Youâ€™ve made Angeloâ€™s tandem bike dream even more special. He had such a blast in our parking lot riding his bike, and we know he will enjoy it for many years to come!
Dreams give our dreamers and their families a much-needed break from their medical concerns and the opportunity to make life-long memories together. Angelo is eight and is a neurological patient. We are very proud of his bravery in treatment.
On behalf of Dreams Come True and our dreamers, thank you for your generosity and support!
Courtney D. Andrews
Dreams Come True